The Usher Syndrome Foundation

The Usher Syndrome Foundation Blog

Inspiration

Megan O’Neill, born with a moderate hearing impairment, was studying to be an architect at the University of Kansas when it was discovered that an increased difficulty with her vision was actually due to Usher syndrome. A condition we had never heard of until that day. At 23 years of age, Megan is already considered legally blind.Find out more about Megan
About Usher Syndrome

About 20,000 people in the United States have Usher syndrome. It is the leading cause of combined deafness and blindness world wide. At this time there is no cure for Usher syndrome and treatments are experimental. As it is the rarest form of RP (retinitis pigmentosa), it is afforded the least amount of funding from organizations that raise money for research of RP and other forms of blindness.Find out more about Usher Syndrome